TEAM SIERRA~MARATHON MADNESS! :D

    TEAM SIERRA~MARATHON MADNESS! 


     



    My Great Strides Story


    MY INCREDIBLE, FIRST BORN CHILD SIERRA ROSE HAS CF! THANKS TO YOU AND "TEAM SIERRA!", 
    ROSIE TURNS 25 YEARS OLD THIS YEAR! WOOP!  WOOP! :D

    Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I WALK, RUN, BIKE AND DO ANYTHING I CAN for them! In May this year, I will run a marathon as my fundraising event!

    Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

    You can support me through TEAM SIERRA! :D
     
    By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history. 

    LET'S DO THIS!!! :D
    PEACE! LYNN 

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    NOTE FROM SIERRA ROSE! 

    Hi all!

    A little update on life :)

    I am currently living in San Diego, and absolutely loving it. I am working as an event coordinator for the Hilton in downtown San Diego, right by the harbor. Learning the ins and outs of this position have been a great experience and stepping stone for me.

    I turn 25 this year on July 25th, wow! Pretty wild to think about. Life has been amazing and challenging. While it is thrilling that I have finally moved out of my childhood home, I am also hit with so many realities about growing up and becoming that responsible adult. I am grateful for all the learning experiences and just rolling with what life hands me. 

    That’s the best we can do right?!

    I am so grateful to say I have been super healthy and well, while consistently prioritizing my health. In the past, this could be a struggle for me, however, I am happy to say that it has become even more of a central focus in my life. The active lifestyle in SD is inspiring, as well as having a very active boyfriend! 

    I have been spending most of my time with my boyfriend and friend group down here in SD and feel so blessed to be in such a lively place, with so much to do.

    I am now currently with the UCSD Cystic Fibrosis Adult Clinic, and they are amazing. I actually go in for my PFT's today!

    Trikafta has been a success, and I am so grateful my body can handle being on it 24/7. I am beyond blessed, along with many other CF patients, to experience this. This is all due to your generous help, support and donations.

    Thank YOU for making this my reality. We will not stop fighting to find a cure until every Cystic Fibrosis patient has the proper treatment to relieve those long term symptoms.


    We appreciate all you do!

    All the best!
    - Sierra Rose Blomquist