Guardians of the Lungs Motorcycle Run

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Guardians of the Lungs
Motorcycle Run

Event Info

Date: April 13, 2024

Location: Alexandria Police Association Hall



 The Oakley Family Story
Guardians of the Lungs

Our family is fueled by a deep belief in the power of the greater good. We've always known that with unwavering dedication, collaborative effort, and a touch of love, incredible things can happen. It's a fundamental part of our story.

Picture this: Marcella and Will, two detectives from Northern Virginia, brought together by fate, forming a family of four with our two eldest. Then, eight years ago, our world transformed with the arrival of our feisty, energetic, and incredibly loving third child.
Yet, the story takes a turn. A day after her birth, we received heart-wrenching news—complications suggested she might have cystic fibrosis. This rare condition disrupts the balance of salt and protein in the body, impacting the lungs, pancreas, and other vital organs. In that delivery ward, we, seasoned detectives, faced a crisis. But instead of succumbing to despair, we armed ourselves with the tools we knew best—determination and resilience.

Our journey with the Cystic Fibrosis (CF) community has been a testament to miracles born from perseverance. In the throes of a pandemic, our daughter's hospitalization became a turning point. The FDA's approval of Trikafta, a groundbreaking medicine, ushered in hope. By targeting genetic mutations at the root of the disease, Trikafta has the potential to alter the course of CF, offering a more normal life span.

Our world has expanded and become more profound over the last eight years. Love, in its rawest and most beautiful form, fuels our every step. We've developed a strategy, joined forces with other passionate individuals, families, and friends in the fight against Cystic Fibrosis. But not everyone can access Trikafta. We live cautiously, managing airway clearance therapies and daily enzymes, mindful of potential dangers. Yet, there are those who run faster in the race against time without the aid of Trikafta. We fight for them, for our daughter, standing united until a cure is found.

This may seem like just another plea in your feed, amidst a sea of fundraisers. Yet, we ask, would you consider joining us, riding alongside us towards a cure? We won't stop. We'll hold the line, persist in our search, and continue the fight. Love propels us forward, and with your support, we can amplify our impact. Together, let's turn the tide against Cystic Fibrosis and make a difference that transcends generations. 
Would you be against being a part of our journey by donating, sponsoring or riding in our Guardians of the Lungs motorcycle run? Scan the QR code on the flier to be a part of this worthy cause.