WHAM CF Golf Tournament
October 12, 2020
Dear Friends of WHAM,
Normally this time of year we’d be reaching out as a call to action for the annual WHAM CF Golf Tournament. Unfortunately, this year is unprecedented. Due to the Covid 19 pandemic, we are unable to host a group event to raise money for cystic fibrosis. For this reason, we are now having to reinvent what would have been our 10th Annual WHAM CF Golf Tournament.
As many of you know from having supported this event year after year, the Remington Family (WHAM) is near and dear to our family and we’ve been fortunate to witness how both Alexander and Hazel have benefitted from the widespread efforts that have taken place over the last decade. We’ve also been fortunate to have joined forces with Jase’s Pride and their enthusiasm for fundraising is relentless. Every year this annual tournament success happens because of the generosity of every player and every donor. This group effort is what defines the success of WHAM CF and although the circumstances are drastically different this year, we will not let this slow our efforts.
In 2020, the call to action to fund research is greater than ever. The family updates below speak volumes as to why fundraising efforts are so important this year.
Alexander and Hazel’s update:
Since the last tournament in November of 2019, Alexander finished up his freshman year of college at Gettysburg College in Pennsylvania. He really enjoys college life and was even featured on a video podcast about what it is like to have CF and be in college. https://jerrycahill.com/tag/alexander-remington/
He was excited to go back to college in August and had to return 3 weeks later when his college closed) but in general he looks forward to studying all kinds of history. Hazel (the snack cart girl) is starting out her junior year in high school, and is disappointed that the tournament is cancelled because she was hoping to show off her new driving skills while driving the cart by herself to bring treats out to everyone on the course. Both kids started the new CF medication, Trikafta, just after the tournament last year and their health has been outstanding.
What a year it has been for Jase! In the fall of 2019, he started kindergarten and loved the adventure of school. At the same time, we had the struggles of CF, including staying home from school due to illnesses passing around the classroom and getting admitted for a couple of days with an intestinal obstruction putting a damper on the Christmas holidays. After the new year, he was in for surgery to clear out and open up his sinuses and what a difference that has made! He can breathe better and really taste food. Just as he was returning to school in the spring, the pandemic hit.
Jase has been navigating the isolation of the pandemic as best as any rambunctious 6-year-old can, but he misses going to the zoo and his favorite stores. He’s been in the ER twice since this all started due to the intestinal obstruction. He has small reprieves from the four walls of home when we get to go hiking or biking on isolated trails, but it’s not the same as running and laughing with your cousins or your friends. We celebrate all the advances made in treatments for 90% of those with CF – but our fight is not over.
While Alexander and Hazel have benefited tremendously from the latest CF drug treatments, Jase doesn’t qualify for these treatments so there is much more work on this front to be done. Our ultimate dream and goal is to help find a cure!
Similar to the past nine years, please expect to see friendly emails and text messages from us that will serve as reminders of this effort.
We’d love to keep with tradition and raise at least $50,000 for CF! Please consider donating what you would have spent at the 10th Annual WHAM Golf Tournament. This will be the year where every penny will count and go towards a cure for CF!
Let’s keep this momentum going and reach $200,000 for a ten year total of fundraising! Please donate, it is easy, just use the "DONATE" button just above this letter.
We also realize that San Diego is heating up! The first person to donate $600 will win a new portable Black and Decker air conditioner. https://www.lowes.com/pd/BLACK-DECKER-450-sq-ft-115-Volt-White-Portable-Air-Conditioner/1001847744?cm_mmc=shp-_-c-_-prd-_-app-_-google-_-pla-_-235-_-soscooling-_-1001847744-_-0&placeholder=null&gclid=Cj0KCQjwoJX8BRCZARIsAEWBFMLxxnuxTIbZq7akKxLrj9WAub54JoXIhQaQ4ckkeEDskIM2-PtaxKwaAqNFEALw_wcB&gclsrc=aw.ds Local pick up only.
**It’s been an ongoing tradition to hold our annual Orange Up contest for best orange attire and we are keeping with tradition but with a twist - virtual style! Should you decide to get all decked out in your best orange outfit, please upload it to the WHAM Wall of Fame on this Facebook link https://www.facebook.com/WHAM-CF-120944091249317/
before November 9th and you’ll be entered to win a $100 gift card to our always loyal sponsors, DIRTY BIRDS!**
We’ll never be able to properly thank you for your participation and support over the last ten years and we can’t wait to see everyone on the golf course for WHAM 2021!
With love and gratitude,
Devin and Angie Fitzmaurice
Mike and Wendy Remington
Marian and Jamie Schlosser