Weiner Roast 2020
This year, Weiner Roast will take place on:
1 to 6 pm
At the Home of the Weiner Family
2024 Spring Branch Drive
Vienna, Virginia 22181
We have hosted this event for the last 9 years because our children Matt and Melissa have cystic fibrosis (CF) -- a serious, life-threatening genetic lung and digestive disease. The lifesaving research and innovative medical treatments funded by the Cystic Fibrosis Foundation (CFF) have had a profound effect on our children’s lives.
In October 2019, the FDA approved a new CF drug, Trikafta, which the CF Foundation believes will be the first "highly effective" therapy for the underlying cause of this disease. More than 90 percent of people with CF, including Matt and Melissa, have mutations that will respond to Trikafta. However, Trikafta also comes with warnings related to its effects on liver function, along with significant drug interactions and an elevated risk of cataracts, so it may not be suitable for Melissa or Matthew. It also costs $360,000 per year for the rest of a patient's life. So, even though there has been great progress, we still need your support to keep researchers working for a cure for our children!
So please click on the DONATE button above and make a donation!
Hosting Weiner Roast takes lots of helping hands, so if you have the time and interest in helping us with the Silent Auction, baking cookies for our awesome dessert display, or helping in a thousand different jobs at the event, you can sign up right from this page! There are buttons on the top right and middle of the page, and we really appreciate your help!
Thank you again for your ongoing support for Weiner Roast and the Cystic Fibrosis Foundation. We are truly, truly grateful for the joyful and healthy years your generosity has given us with our children. This year, Melissa graduated from college, and Matt got engaged! These are milestones we only ever dreamed we would share with our children back when they were first diagnosed. Thank you all for your ongoing support for our family.
Harvey and Janet Weiner