Event Info

 

CF sports camp supporting Reagan and Kennedy Vance

Who: Students in Kindergarten through 3rd grade 

What sports will we do? Monday, 27th-Basketball
                                                       Tuesday, 28th-Soccer
                                                       Wednesday, 29th- Volleyball
Students can attend one or all three days. We will be teaching the fundamentals of these sports. We will also be playing group games and having fun!

Where: Divine Redeemer Gymnasium

Time: 9:00-10:30am

Cost: There is no specific cost. We would like all students to be able to participate. We ask that you make a donation to the Cystic Fibrosis Foundation.
You can donate online using the button on this page. You may also bring a check made out to the Cystic Fibrosis Foundation the day of camp. No amount is too small. We appreciate anything. Cystic Fibrosis receives no government funding because it is so rare. We solely rely on fundraisers like this one to support research. 
 
How do I register for camp: There are 2 ways you can register for camp. Pick one option. 
1.Use the online donation button on this page and I will put you down for camp. 
2.Email me and let me know you will be coming and paying in person.

What is CF? Reagan and Kennedy were both diagnosed with this disease via the newborn screening. Mom and Dad are carriers and were unaware of it. At the age of 2 weeks old the girls were already taking pills and doing treatments to help fight of the progression of this disease. 

Cystic fibrosis is a genetic disease that affects the lungs, pancreas, and other organs. Many people think it is just a lung disease but it is much more complicated than that. 

There are close to 40,000 children and adults living with cystic fibrosis in the United States. Our family happens to have 2 of them! In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly the mucus in various organs becomes thick and sticky. In the lungs, the mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, respiratory failure, and other complications. Reagan and Kennedy do a vest and inhaled medicine everyday to help rid the body of this mucus. In the pancreas, the buildup of mucus prevents the release of digestive enzymes that help the body absorb food and key nutrients, resulting in malnutrition and poor growth. Reagan and Kennedy take pills before they eat to help digest their food. In the liver, the thick mucus can block the bile duct, causing liver disease. Although there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. Thank you for helping us raise money to find a cure. 

Need help? Contact Kelsey Vance- kvance@divineredeemer.net
719-660-2328