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Welcome to Egg My House:  a fundraiser developed to raise money for the Cystic Fibrosis Foundation in light of the pandemic limitations for the yearly Great Strides walk.


 

There are approximately 30,000 Americans living with cystic fibrosis. My daughter, Alyssa, is one of them.   We raise funds for her.  I also have dozens and dozens  of friends I've met on this journey who also have CF or have a child with CF.  I fundraise for them.   

Our journey with CF began when Alyssa was born.  Symptoms of CF emerged while we were still at the hospital, and she was diagnosed at 4 months old.  Her first few years were bumpy.  We had lung infections, weight issues, and many hospital stays.  As she got a little older, and we were able to keep her active and on a solid treatment regime, she did a lot better.  We are proud and thankful that she has not had a hospital stay in many years.  But this disease is unpredictable, progressive, and while there are some wonderful medications as a result of the research funded by the Cystic Fibrosis Foundation, there is still no cure.   We are hopeful, though.  Alyssa and others with this disease have access to so many groundbreaking medical miracles.  All of these life lengthening medicines come out of research paid for from the money earned during Great Strides.  This year, Great Strides is virtual, so we decided to try a new way to raise funds.