Driving Miss Desi Day

|| Driving Miss Desi Day ||


Date: April 27, 2019

Location: Pure Barre Huntsville
2010 Southpoint Park Cir Huntsville, AL 35801


Contact: Huntsville@purebarre.com
 

Lift. Tone. Burn. Cure Cystic Fibrosis!

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Grab your best friends and join us for a fun morning surrounded by others passionate about making a difference in the lives of those battling cystic fibrosis.

We always say Pure Barre is more then exercise- it is community.  It is cheering friends on and being helped/helping others. We now come together to rally around our instructor, Jamie, her family and more specifically her 3 year old daughter Desi who has cystic fibrosis. 

||  Looking at Desi, she looks like every other toddler, you would never know that her organs struggle to operate.  ||
 

Cystic Fibrosis is a life shortening genetic disease that impacts every organ but hits the lungs and digestive system the hardest. Cystic fibrosis will progressively make it difficult for her to breathe

For Desi, cystic fibrosis impacts every hour of every day. When healthy, she completes 1 hour of breathing treatments, 1 hour of airway clearance treatments, takes over 16 pills, 8 medications/supplements, must eat a high calorie diet, must stay 6 feet apart from another CF patient and also exercises, all to try and stave off the impact of cystic fibrosis. When she is sick (even just a cold) much of that routine is doubled. 
 

|| Our goal is that Desi have more chances to playing outside (and be a kid!) rather then having to sit for medical treatments or worry about hospitalizations. ||
 

|| CYSTIC FIBROSIS FOUNDATION ||
Where ALL of our donations, and prayers, go to

Our hope is that this event will help the Cystic Fibrosis Foundation forward their mission to find a cure for all people with cystic fibrosis. 

The Cystic Fibrosis Foundation has fueled dramatic improvements in cystic fibrosis research and care. Because of the Foundation, people with CF are living longer and healthier lives.  The outlook for people with CF continues to improve year after year because of events like ours.

60 years ago a diagnosis of cystic fibrosis meant that the child wouldn’t live long enough to attend kindergarten. Today, the median life expectancy is in the 40’s, however, that is not guaranteed for Desi AND it is not enough!
 

||  D O N A T I O N S ||

How you can help Desi lead a longer, and better, life

We have so many ideas on how you can join us in being a chauffeur to help Drive Miss Desi!
 

Select the DONATE button at the top of the screen to make your donation (and receive your tax deductible receipt). 

Would your business like to sponsor Driving Miss Desi Day? Let us know! We have all tax necessary documents we can happily provide. Email us!

Do you know a business who you'd like to invite to sponsor this event? We have cards you can drop off to them! Email us and we can have them waiting in studio for you.


Think your employeer will match your donation? Click here to see. 

Can't make the event? We understand Saturdays are busy, but, you CAN still join us in advancing cystic fibrosis research for Desi, and all those living with cystic fibrosis! 

 

Donations are appreciated even if you are unable to attend in person!
 

This is a shareable page. Use Text, Facebook, Email, Instagram and Twitter to invite your friends and family to contribute toward our community fundraising goal!
 

||  OTHER WAYS TO GET INVOLVED  ||
 

-- May 11, 2019- Mark your calendar! We will be walking for Desi at the Great Strides walk at Campus 805. Grab a Team shirt Here!
 

-- Do you also want to partner with Team Driving Miss Desi for a fundraiser? Email Jamie at TeamDrivingMissDesi@gmail.com

-- Follow Driving Miss Desi on Instagram or Facebook for updates on research and to see more of Desi's life as a toddler and as a cystic fibrosis patient. 

 

Thank you for joining us in Driving Miss Desi to that coveted cure for cystic fibrosis!

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