Band of Roses

This text is editable. Click "Enable Editing" in the top right to edit.

Event Info

Date: October 12, 2019

Time: 6-10pm

Location: Pipe Dream Brewery

Contact: Dana -

Could drinking beer while dressed as Axl Rose cure disease?  Let's give it a shot!  Here's how it works....

1.  Purchase a rose decal* on this very website for a suggested donation of $65.  This rose decal serves as admittance for two to our Band of Roses costume party at Pipe Dream Brewery.

2.  Show up to the party dressed to impress as a famous musician/band member/singer and possibly win a prize!  Costumes are encouraged but not required.  Feel free to wear your favorite band tee if dressing up isn't your thing.

3.  Drink beer in the private room we rented, dance to the sweet sounds of our deejay, sign your decal with flair and stick it to the Porshe parked outside.

4.  Bid on silent auction items and win prizes!

5.  Cure CF for my son Reid and all the CF patients around the world with your generosity.....await all the good karma coming your way! 

<<<If you can't come but would still like to donate - please do!!  Just let us know not to count you in the headcount>>>

We can have up to 100 people in the room and we hope to pack it so please - bring a friend!

Most of all - thank you for supporting this cause.  We feel so blessed to have the very best community around us.  You have answered the call time after time when Reid needs help, whether it be in the form of donations, prayers or overall support.  The fight for Reid's health and future is so hard, but you make it easier.  We love you!

The decal-covered Porshe is owned and operated by semi-professional driver/Kansas City bad boy Aaron Alexander.  Aaron and his team will be racing the car at the 24 Hours of Lemons Halloween Hooptiefest event the following weekend.  We can't thank the Alexander family enough for using a passion of theirs to benefit Reid and the CF Foundation.  If you'd like to cheer on RNS (rust never sleeps) Racing, and possibly see Aaron's dad get duct-taped to the roof of the car, please join us at the NH Motor Speedway, 1122 Route 106 North, Loudon, NH on OCTOBER 19 & 20.

*You will receive your rose decal at the event where you can personalize it and stick it to the car which will be parked right outside. 

Why 65 Roses?

The "65 Roses" story dates back to 1965 when an observant 4-year old, hearing the name of his disease for the first time,  and pronounced cystic fibrosis as "65 Roses."  Today, "65 Roses" is a term often used by young children with cystic fibrosis to pronounce the name of their disease.