65 Miles for 65 Years
In Honor of the 65th anniversary of the Cystic Fibrosis Foundation I will be riding my bike 65 miles in 1 day to raise money and awareness for my 6 year old son Zach, who works relentlessly to maintain his health in spite of his diagnosis. Zach's daily regiment includes albuterol, hypertonic saline nebulizer, chest physiotherapy, symdeko, lansoprazole, cetirizine, miralax, ipratropium bromide,vitamins and enzymes with every meal.
The 65 Roses Story
The “65 Roses” story dates back to 1965 when an observant 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as "65 Roses." Today, “65 Roses” is a term often used by young children with cystic fibrosis to pronounce the name of their disease.
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social, and service organization, seeking financial support for CF research. Mary's 4-year-old son, Richard (Ricky), listened closely to his mother as she made each call.
After several calls, Richard came into the room and told his mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis.
With some trepidation, Mary asked, "What am I working for, Ricky?" He answered, "You are working for 65 Roses." Mary was speechless. He could not see the tears running down Mary's cheeks as she stammered, "Yes Ricky, I'm working for 65 Roses."
Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with.
The ugly fact is that cystic fibrosis is a life-threatening genetic disease that affects 30,000 children and adults in the United States.
Sadly, Richard lost his fight against CF in 2014. Richard is survived by his devoted wife, Lisa, his adored dog, Keppie, and his brother, Anthony.
The "65 Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.